I am writing to strongly urge my representative to cosponsor the Huntington's Disease Parity Act of 2013 (H.R. 1015) and to ask my senators to cosponsor the Senate companion, S. 723.
If passed, the Huntington's Disease Parity Act would make it easier for people with HD to receive Social Security disability and Medicare benefits.
Huntington's disease is a hereditary, degenerative brain disorder for which there is, at present, no effective treatment or cure. HD slowly diminishes an individual's ability to walk, talk and reason.
Eventually, every person with HD becomes totally dependent upon others for his or her care. HD profoundly affects the lives of entire families -- emotionally, socially and economically.
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By cosponsoring the Huntington's Disease Parity Act of 2013, members of Congress can show their support for not only for the family, but the nearly 1 million Americans who are touched by this terrible disease.